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Useful resources to bring with you to your appointment: International Consortium on the Ehlers-Danlos syndromes in 2017 hosted by Ehlers-Danlos Support UK – GP Toolkit American Journal of Medical Genetics ‘The 2017 international classification of the Ehlers- Danlos Syndromes’ (as well as other articles from the March 2017 issue – www.ehlers-danlos.com/2017-eds-international-classification) Hypermobile EDS Diagnostic Checklist Since Hypermobile EDS is the most common type of EDS, using the diagnostic checklist is a good place to start
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